Author: Jnetics
JGD UK At Yom Masorti 2013
On Sunday 10th February, New North London Synagogue hosted a wonderful Yom Masorti 2013 which was attended by over 250 people. Jnetics featured prominently amongst the vibrant stalls which sold everything from books to massages to cookery gadge...
GPs And Genes – Forum On JGDs Hosted By Chana
On Wednesday 28th November, Chana hosted a GP forum called ‘GPs and Genes’. The session was well attended by a group of Jewish GPs interested in learning more about Jewish genetic disorders (JGDs) and what they can offer their patients in terms...
Community Hero Recognition For Ian And Jane Pearl
We are proud to announce that one of our trustees, Ian Pearl, and his wife Jane were recognised at the Jewish News Community Hero Awards last night. Having already been chosen for the final shortlist, Ian and Jane were ‘highly commended’ for thei...
The New And Improved JGD UK Website
We have upgraded and now launched our website with thanks to funding from Jeans for Genes and the Dr Benjamin Angel Foundation. Designed to signpost people to the best available information, services and support, our new site will help make a real...
Familial Dysautonomia Video: SEE ‘JANE’S STORY’ HERE
Jane’s Story is an informative and moving short video that captures the experience of living with Familial Dysautonomia (FD) through the personal story of the Pearl family,. FD is a rare Jewish genetic disorder that affects the autonomic and sen...
JGD UK Is Now On Twitter!
Jnetics is very excited to be joining the twittersphere! We are working hard to raise awareness of Jewish genetic disorders and to provide information on the best available information, services and support… and we’re now using Twitter to help...
Jeans For Genes Fund New JGD UK Info And Referral Service
In January 2012 Jnetics was delighted to receive a grant from Jeans for Genes to develop an effective ‘signposting’ service to facilitate access to the best available information, expertise and support for those affected by Jewish genetic diso...
Stanmore Synagogue Host A Panel Presentation On JGDs
They say that 1 in 5 Ashkenazi Jews is a carrier of a Jewish Genetic Disorder. How do we find out if we are the 1? How can we protect our children and grandchildren and how do we deal with the information if we find out we are carriers? How can the J...
Review Of Jewish Genetic Disorders In The UK Published
Jnetics has produced the first-ever review of awareness, education and services of Jewish genetic disorders in the UK. The report summarises findings from a year-long consultative dialogue with key stakeholders in the Jewish, patient group and medica...
JGD UK At Peir Seminar
Peir (Promoting Excellence in Rabbis) hosted a professional development seminar on the subject of ‘Genetics in the Jewish Community’ on 21st June 2011. The well-attended seminar focused on some practical and halachic issues associated with inheri...